top of page

Rare Not Alone

Do you or a loved one have a rare diagnosis?


Do you feel you cannot be the only one in this world who does?


Do you feel alone with it and want to find others?


Rare Guru is a community app that connects people around the world who have a rare diagnosis.


Started by the Barrow family feeling alone and struggling when they received a rare diagnosis of Hypophosphatasia (a rare genetic metabolic bone disorder) back in 2019.


"There are 400 million people living with 7,000 rare diseases, disorders, and syndromes in 195 countries. RareGuru is the one App that connects them all." -RareGuru


You find out more & download here: https://rareguru.com/

Recent Posts

See All

Comments


bottom of page