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Rare Not Alone

Writer's picture: Parent's Survival TeamParent's Survival Team

Do you or a loved one have a rare diagnosis?


Do you feel you cannot be the only one in this world who does?


Do you feel alone with it and want to find others?


Rare Guru is a community app that connects people around the world who have a rare diagnosis.


Started by the Barrow family feeling alone and struggling when they received a rare diagnosis of Hypophosphatasia (a rare genetic metabolic bone disorder) back in 2019.


"There are 400 million people living with 7,000 rare diseases, disorders, and syndromes in 195 countries. RareGuru is the one App that connects them all." -RareGuru


You find out more & download here: https://rareguru.com/

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Registered Nonprofit: 5024305632

Phone: 877-359-3211

Treaty 7 Territory Land Acknowledgement

In the spirit of reconciliation, we acknowledge that we live, work and play on the traditional territories of the Blackfoot Confederacy (Siksika, Kainai, Piikani), the Tsuut’ina, the Îyâxe Nakoda Nations, the Métis Nation (Region 3), and all people who make their homes in the Treaty 7 region of Southern Alberta.

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